resources

The following is a small sample of Internet links to autism resources; inclusion here does not necessarily reflect my own point of view. Rather, I attempted to provide a list of well-known resources reflecting different points of view regarding the autism spectrum. I believe that with the wealth of Internet sites available, it is up to the reader to determine his/her favorites. Each site mentioned here has several additional linked sites, so the reading and research on this topic can be very time-consuming, albeit interesting. Where the description of the site is located within quotation marks, the paragraphs have been taken directly from the site.

This is a simple yet clear description of what behavior analysis has to offer, in what ways it can be used, and a lengthy list of resources.

This lists the emerging research on developmental and play-based interventions. While there is not as much research on the use of DIR/Floortime or other developmental models, there are published studies and more are being published annually.

This is the home site of the Interdisciplinary Council on Development and Learning Disorders; it is the home site of the DIR/Floortime methodology”

“ASA, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, ASA is the leading source of trusted and reliable information about autism. Through its strong chapter network, ASA has spearheaded numerous pieces of state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. ASA’s website is one of the most visited websites on autism in the world and its quarterly journal, Autism Advocate, has a broad national readership. ASA also hosts the most comprehensive national conference on autism, attended by 2000 people each year. Our information and referral team, our program staff, and our strong chapter presence serve thousands of families each year who are searching for help in their journey with autism.”

This is the local Massachusetts Chapter of the ASA; on this page, one can join the state and national organizations.

"The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA's efforts to carry forth its mission”.

"At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.

We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.”

"The Autism Research Institute (ARI), a non-profit organization, was established in 1967. For more than 40 years, ARI has devoted its work to conducting research, and to disseminating the results of research, on the triggers of autism and on methods of diagnosing and treating autism. We provide research-based information to parents and professionals around the world.”

This site is the National Center for Disease Control’s official web site on autism. It features their take on autism and vaccines, as well as other topics.

This is the website of the National Institute of Neurological Disorders and Stroke, a part of the National Institute of Health. The mission of NINDS is “to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.”

"The Autism Collaboration is a group of organizations which share common goals, objectives and dedication to the autism community. Framed by the Autism Research Institute’s Memorandum of Understanding (MOU), the Collaboration funds, develops, integrates, advocates, educates, shares, and applies knowledge to benefit individuals and families affected by autism.” Member organizations include the Autism Research Institute, The Autism Society of America, Defeat Autism Now, National Autism Association, and others.

This page is from the National Institutes for Health, listed as part of “ trusted health information for you”. It is a service of the U.S. National Library of Medicine and the National Institutes of Health.

"The mission of the National Autism Association is to educate and empower families affected by autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights. We will educate society that autism is not a lifelong incurable genetic disorder but one that is biomedically definable and treatable. We will raise public and professional awareness of environmental toxins as causative factors in neurological damage that often results in an autism or related diagnosis. We will encourage those in the autism community to never give up in their search to help their loved ones reach their full potential, funding efforts toward this end through appropriate research for finding a cure for the neurological damage from which so many affected by autism suffer.”

This is the official site of the National Institute of Mental Health, which has as its subtitle "Reducing the burden of mental illness and behavioral disorders through research on mind, brain and behavior”.

Science Daily, an online newsletter, has a section under “Mind and Brain” called autism. Click on autism and the reader will find recent scientific articles about autism. It’s very interesting.

This is a list of one organization’s list of the top 25 autism blogs; most of these I do not read but you might find some you like.

I faithfully read Ms. Chew's daily blog about living with her son, Charlie, in 'Autismland'. She is an excellent writer, a thoughtful and reflective mother, and writs a warm and wise blog. In addition to all of her great qualities, she managed to write daily blog comments, a major feat, in my opinion. I really enjoy this one.

You can contact Dr. Susan Gurry at the following email address or submitting the form on the contact us page.


GURRY AUTISM CONSULTING, LLC Educational and Behavioral Consulting in Autism Spectrum Disorders and Related Disabilities
home services about dr gurry resources blog/updates contact us	Autism Resources/Links The following is a small sample of Internet links to autism resources; inclusion here does not necessarily reflect my own point of view. Rather, I attempted to provide a list of well-known resources reflecting different points of view regarding the autism spectrum. I believe that with the wealth of Internet sites available, it is up to the reader to determine his/her favorites. Each site mentioned here has several additional linked sites, so the reading and research on this topic can be very time-consuming, albeit interesting. Where the description of the site is located within quotation marks, the paragraphs have been taken directly from the site. 1. What is ABA? http://www.shapingbehavior.com/whatisaba.html This is a simple yet clear description of what behavior analysis has to offer, in what ways it can be used, and a lengthy list of resources. http://www.autismspeaks.org/what-autism/treatment/applied-behavior-analysis-aba This summarizes the research on use of ABA with children on the spectrum. 2. What is DIR/Floortime? http://www.autismweb.com/floortime.htm This site explains DIR/Floortime in simple terms. http://www.icdl.com/dirFloortime/research/index.shtml This lists the emerging research on developmental and play-based interventions. While there is not as much research on the use of DIR/Floortime or other developmental models, there are published studies and more are being published annually. http://www.icdl.com/ This is the home site of the Interdisciplinary Council on Development and Learning Disorders; it is the home site of the DIR/Floortime methodology” 3. Autism Resources and Organizations: http://www.autism-society.org/site/PageServer “ASA, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy. Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, ASA is the leading source of trusted and reliable information about autism. Through its strong chapter network, ASA has spearheaded numerous pieces of state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. ASA’s website is one of the most visited websites on autism in the world and its quarterly journal, Autism Advocate, has a broad national readership. ASA also hosts the most comprehensive national conference on autism, attended by 2000 people each year. Our information and referral team, our program staff, and our strong chapter presence serve thousands of families each year who are searching for help in their journey with autism.” http://www.geocities.com/asamasschapter/ This is the local Massachusetts Chapter of the ASA; on this page, one can join the state and national organizations. "The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA's efforts to carry forth its mission”. http://www.autismspeaks.org/ "At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders. We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.” http://www.autism.com/ "The Autism Research Institute (ARI), a non-profit organization, was established in 1967. For more than 40 years, ARI has devoted its work to conducting research, and to disseminating the results of research, on the triggers of autism and on methods of diagnosing and treating autism. We provide research-based information to parents and professionals around the world.” http://www.aap.org/healthtopics/autism.cfm This is the American Academy of Pediatrics’ autism health topics page. http://www.cdc.gov/ncbddd/autism/ This site is the National Center for Disease Control’s official web site on autism. It features their take on autism and vaccines, as well as other topics. http://www.ninds.nih.gov/disorders/autism/detail_autism.htm This is the website of the National Institute of Neurological Disorders and Stroke, a part of the National Institute of Health. The mission of NINDS is “to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.” http://www.autism.org/ "The Autism Collaboration is a group of organizations which share common goals, objectives and dedication to the autism community. Framed by the Autism Research Institute’s Memorandum of Understanding (MOU), the Collaboration funds, develops, integrates, advocates, educates, shares, and applies knowledge to benefit individuals and families affected by autism.” Member organizations include the Autism Research Institute, The Autism Society of America, Defeat Autism Now, National Autism Association, and others. http://www.nlm.nih.gov/medlineplus/autism.html This page is from the National Institutes for Health, listed as part of “ trusted health information for you”. It is a service of the U.S. National Library of Medicine and the National Institutes of Health. http://www.nationalautismassociation.org/mission.php "The mission of the National Autism Association is to educate and empower families affected by autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights. We will educate society that autism is not a lifelong incurable genetic disorder but one that is biomedically definable and treatable. We will raise public and professional awareness of environmental toxins as causative factors in neurological damage that often results in an autism or related diagnosis. We will encourage those in the autism community to never give up in their search to help their loved ones reach their full potential, funding efforts toward this end through appropriate research for finding a cure for the neurological damage from which so many affected by autism suffer.” http://www.nimh.nih.gov/health/publications/autism/complete-publication.shtml This is the official site of the National Institute of Mental Health, which has as its subtitle "Reducing the burden of mental illness and behavioral disorders through research on mind, brain and behavior”. http://www.sciencedaily.com Science Daily, an online newsletter, has a section under “Mind and Brain” called autism. Click on autism and the reader will find recent scientific articles about autism. It’s very interesting. 4. Blogs http://www.babble.com/Baby/baby-development/top-25-autism-blog-full-list/ This is a list of one organization’s list of the top 25 autism blogs; most of these I do not read but you might find some you like. http://autism.typepad.com/ I faithfully read Ms. Chew's daily blog about living with her son, Charlie, in 'Autismland'. She is an excellent writer, a thoughtful and reflective mother, and writs a warm and wise blog. In addition to all of her great qualities, she managed to write daily blog comments, a major feat, in my opinion. I really enjoy this one. You can contact Dr. Susan Gurry at the following email address or submitting the form on the contact us page. gurryconsulting@comcast.net 617-549-7004 Collaborated on site Jonathan Spiller and Sue Gurry